Last month, we spoke about different steps you could be taking to best manage your loved one’s disability. This month, we’d like to focus on the bond that forms between a parent and a child with special needs. That’s why we sat down with Harold Finkel, retired engineer, Easter Seals volunteer, and parent of a child with special needs to ask him about
Caring for a loved one with a disability can be one of the toughest jobs around. Non-stop, physical, mentally and emotionally exhausting; adjusting your life to accommodate someone who is living with an intellectual or physical disability can be a daunting challenge. Though, by implementing these three simple concepts into your approach to daily care management, you can take steps towards removing some of the stresses that may be affecting both you and
By Guest Blogger James Richardson, Health and Wellness Coordinator
Though it was off to a slow start, winter is officially here. And let’s face it; it’s easy to shift into hibernation mode. However, that won’t help keep us in optimal health. Though we tend to slow down in the winter months there is an easy way to keep things moving: Weather permitting – take a vigorous walk! Walk indoors or outdoors when conditions allow. Twenty to thirty minutes a day of walking has been shown to
Celebrating the Holiday Season is a reason to eat, drink and be merry. Who can resist? Is it possible to get through the holiday season without gaining weight? I cannot promise that, but it is possible to minimize weight gain and use each day as a chance to get back on track by trying some of these tips. It is important to know that all of us, whether or not we live with a disability or other special need, can enjoy a healthy and productive holiday season!
In New Jersey, as well as other states across the country, an Individualized Education Plan (IEP) is a written document that outlines a child’s (with a special need or disability) education, ages 3-21. The plan is tailored specifically to the individual student, so they receive maximum educational benefit. The key word is individual. A program that is appropriate for one student, may not be right for another.
For a child with a disability, the IEP is the cornerstone for their education. It identifies the services that a child needs so that he/she can grow and learn during the school year in a manner that recognizes their disability and challenges. An IEP is also a legal document that outlines three key topics:
The child’s special education plan that includes their goals for the school year
Services needed to help the child reach those goals
A strategy to evaluate the student’s success and progress
For those of you that do not know, a Support Coordinator is someone with expertise in assisting individuals with special needs and their families in their planning process and with coordination of services. Focusing on an individual’s needs, hopes, and dreams, Support Coordinators use their expertise to guide them in the development of their support plan, used to coordinate and monitor appropriate services and supports for the individual.
A few specific ways Support Coordinators provide assistance according to the New Jersey Department of Human Services include:
Assisting individuals and their families in the person-centered planning process
Working with individuals, their families, and mentors to identify outcomes and utilize their budgets to achieve those outcomes
Assisting in identifying services and supports that will achieve the individual’s stated outcomes and can be accessed from a provider who is appropriately qualified by the Divison of Developmental Disabilities (DDD) to provide those services
Becoming and remaining familiar with all applicable service
Easter Seals New Jersey recognizes the various struggles that many caregivers sometimes face when they are caring for a loved one. Often times, these same individuals neglect to care for themselves. For all of you that do not know, November is National Family Caregivers Month, and to honor all of you caregivers out there who work hard all day, every day, to care for your loved ones, this post is for you.
In the most recent studies on Caregivers in the US there was an estimated:
More than 65 million caregivers nationwide
52 million caregivers caring for adults with an illness or disability
Caregivers spend on average 20-35 hours per week providing care
17% feel their personal health suffers due to caregiving
40%-70% of caregivers show significant signs of depression
Only 12% of caregivers report using respite services
78% report needing more help and information about caregiving
35% of caregivers report having difficulty finding time for themselves,
29% report trouble balancing work and family responsibilities
Source: www.seniorcarecorner.com
As most of you know, being a caregiver can be extremely stressful, not giving yourself enough time in the day to worry about your own needs because you are always concerned about someone else’s. When you do focus on your needs, it may feel selfish and unnatural. It is important to understand that an essential part of being a caregiver is to make sure you put yourself first at times. While you may think it will compromise the care of your loved one, you have to understand that it will not. Both your life, and the life of your loved one, depends on your well-being.
With that being said, here are 6 helpful tips on how to manage caregiver stress and the busy lifestyle that comes with it.
Whether you are an individual living with a disability or special need, or if you are a parent/caregiver of a special needs child, you have probably thought about what opportunities are available for young adults with disabilities after high school. Many individuals, parents, and caregivers may not know what is next when it comes to planning for adulthood, however, one option, is to develop skills that can be used in the community that can be applied to a job.
Halloween can be one of the most exciting holidays for individuals of all ages. From the fun costumes, to all the candy, no one wants to be left out of trick-or-treating or attending fun Halloween parties where they have the opportunity to become something else for a night. However, for individuals living with disabilities, the task of finding a Halloween costume may be a struggle, or they might find the experience of wearing one a bit troublesome due to sensory issues. While store bought costumes may work just fine, there is also a chance they can be scratchy and uncomfortable to wear for some. Some store bought costumes also may not be designed for individuals who use walkers, canes, are in wheelchairs, etc. But do not give up! There are several options to address the above concerns and many different costumes out there that can be adapted or created to suit individuals living with a disability.
At Easter Seals New Jersey, our goal is to enrich the lives of people living with disabilities and special needs, and those who care about them, by providing opportunities to live learn, work, and play in their communities!
On October 17th, individuals, families and friends, will participate in the premiere Easter Seals New Jersey Fall Walk With Me & 5K Fun Run to raise critical awareness and funds for individuals living in New Jersey with disabilities and special needs. Proceeds will benefit the nearly 8,000 individuals and families served through Easter Seals New Jersey’s various programs statewide!