Parents who have a child born with Down Syndrome and are having trouble making ends meet because of the additional expenses related to their child’s illness can apply for Social Security disability benefits for their child. The Social Security Administration (SSA) pays Supplemental Security Income (SSI), a type of disability benefit, to the parents of children with serious medical conditions. The money from SSI can be used to pay for any of the child’s living or medical expenses, but the parents must keep records showing that the money is spent on the child’s expenses.
Megan came to Camp Merry Heart as a camper and had a fantastic time. So much so, that she couldn’t stay away. She came back as a volunteer because she wanted to help make sure other campers were able to experience camp the way she did. We ask her what makes her feel so strongly about the camp experience.
Disability / Sensory Friendly Santa is Coming to Town!
We recently highlighted a story on DisabilityScoop.com about sensory friendly Santas holding events that are designed to be accessible for young persons and adults with disabilities. If you have ever attended a traditional gathering of jolly ole’ Saint Nick at your local mall or community center, you will remember the long lines, loud noises, and Santas that might not be exposed to the special needs population. This is usually NOT a sensory/communication friendly experience, but these Santas are looking to change all that.
When you’re about to have a child, you prepare for everything. You paint the nursery, you buy the crib and you do a million other things. And no matter how much you prepare, you will never be ready for a child, but you do your best. One thing many parents don’t consider though, is raising a child with a disability. If you aren’t exposed to the world of disability, you might feel lost and unsure what to do next. So, we compiled a list of eight important reminders
The flowers have bloomed, the trees are green, and the sun has melted away the last remnants of a brutal winter. The time is ripe, for camp. Now, if you are a person with a disability or a parent/guardian of a person with a disability or special need, you might be a little hesitant to sign up for a special needs camp. You might think the over-night camp experience isn’t “for” you. Well, let’s dispel that myth right now
Summer Camp, Special Needs, and a Reason to Return
If you’ve ever attended a summer camp, Easterseals Camp Merry Heart will be a familiar sight. You’ll find it has all the same amenities: cabins, a dining hall, forest trails, a lake… but if you take a closer look, you’ll spot some differences.
In April of 2012, Governor Chris Christie declared New Jersey an Employment First state. With this simple declaration, New Jersey became a part of a national movement that is “centered on the premise that all citizens, including individuals with significant disabilities, are capable of full participation in integrated employment and community life.” (Via Departement of Labor) This urges local publicly-financed systems to adjust their programs and policies to promote integrated, competitive employment opportunities for people with disabilities and special needs.
Phew. That was a lot of three-syllable-words.
In plain-speak though, what does it all mean? It means
The New Jersey gubernatorial race is in full swing and voting will take place this November 7th. We reached out to all the current candidates (as of May 12, 2017) to find out their stances on issues that are important to people with disabilities and special needs and their families, living in New Jersey. We wanted to share these statements with you, our readers, to ensure you know each candidate’s stance on the issues facing the disability community.
With the federal government proposing sweeping changes to public policies that could have a direct impact on state services for people with disabilities and special needs, it has never been more important to elect a strong leader for New Jersey. Easterseals has advocated for and provided services to people with disabilities and their families for nearly 100 years, helping them to live, learn, work, and play in their communities. That’s why we have gathered these statements for your careful review, as they will help you make an informed decision when entering the voting booth this November.
Click on the photos of your candidate to read the statement they provided. (DISCLAIMER: This does not represent every NJ gubernatorial candidate currently running, as not all gave statements in response to our call.)
Candidates are presented in alphabetical order as not to show any preferential treatment towards any one candidate.
Our latest blog topic comes to us from Hinkle, Fingles, Prior, & Fischer, a Jersey-based law firm that represents people with disabilities and their families in the tri-state area. They detailed a landmark decision handed down by the Supreme Court that affects how Individual Education Plans (IEP’s) are deemed “appropriate.”
As IEP’s begin to be set, we want to make sure you stay up-to-date on all the important issues so you’re able to effectively advocate for your loved ones.
Thanksgiving is here and we want to share a few holiday safety tips so you can enjoy a safe and fun holiday. It is also a time to reflect on the things you are grateful for and ensure that all can partake in this family-themed holiday. Read on to hear from our staff and a parent of one of our program participants.